God has set the members … just as He pleased

 

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3-31-13

About a week before Ella Joy started chemotherapy, Asaph started crying every five minutes from morning to night, he would hold his stomach in pain. We went to get an x-ray but everything seemed to look fine. For almost 3 days, he continued to have this pain in his stomach that would come and go all throughout the day and night. It was one of those nights we were so focused on Asaph that we forgot to give Ella Joy her chemo drug for that night! Please pray that even when there are extra challenges that come our way, we would continue to be on top of Ella Joy’s drugs and treatments, and that we would be able to take care of the needs of both Ella Joy and Asaph. A huge thank you to Kim for giving us a ride again this week! And to Jiye and Angela for helping watch Asaph while Ella Joy was inpatient at the hospital. And also to Jeannie who drove us back from downtown after a long week of inpatient at Luries!

This week, the high dose methotrexate started out similar to the weeks past. We gave Ella Joy a lot of water every chance we got, and she cleared at 42 hours, a higher but acceptable .77 which was definitely under the 1.0 mark we needed. However, at hour 48, her levels rose to 1.6! We stayed another night, but from hour 68 to hour 72, it rose again from 0.13 to 0.15 which not only did not meet the mark for under 0.1, but we had to stay another night, making it the longest inpatient stay for hd mtx 5 days! But Monday morning, praise the Lord, she barely cleared with 0.9, and we finally got to go home! Thank you so much for all your prayers everyone!

During this 5 day inpatient stay Ella Joy did not eat much at all. Please pray for her appetite to increase now that she is out of the hospital. She did not get the nutrients she needed to stay healthy after getting this toxic chemotherapy, and my prayer is that she would gain a better appetite so she can continue to fight each day!

We are so thankful to God that this was her last hd mtx! The next time we will be going downtown is on April 9th, and then on April 10th, Ella Joy will get a spinal tap and the chemotherapy vincristine and doxorubicin, and she will also start the doxorubicin pills. Please pray for this visit, especially for her spinal tap since the last time her nurse gave her a spinal tap without any numbing cream on her back. Please pray the cream would numb her back and she would not feel the pain this time around. I think she is traumatized by the last painful spinal tap, and will be very scared to do it again. Please pray God would comfort her through the entire procedure and please also pray for the nurse to have deft hands and much wisdom.

Our family is incredibly thankful for all of the amazing people He has placed in our lives. So many helping with meals for our family, helping with watching Asaph downtown, giving rides, and simply coming up to us and letting us know that they are following our blog and are praying for us. “God has set the members, each one of them, in the body just as He pleased.” – I Corinthians 12:28. We are so incredibly thankful to God for divinely placing each and every single person in our lives to encourage us and help us during such a crucial time! So we just want to thank you all for being such an integral part of our journey! We need all your stored up prayers for the rest of these 2 years of chemotherapy treatment ahead of Ella Joy. Because of your intercessory prayers and love for Ella Joy, we 100% believe you are set by God into Ella Joy’s life , into our family’s life.. just as He pleased!  

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Remember His marvelous works which He has done

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3-13-14

Thank you so much for your unceasing prayers our friends!  Ella Joy’s blood levels were high enough for high dose methotrexate, Praise the Lord!  On March 10th, before we started chemotherapy.  Ella Joy had a spinal tap.  This was the first time she felt the needle without the numbing cream to ease the pain.  The nurse said the press ‘n seal must have moved for Ella Joy to be crying in such pain.  Since the last time her levels did not clear for her 48-hour mark, we were told she would have to have a peripheral IV for hours 42 and 48.  Please pray for Ella Joy, for God to help her endure the pain when getting poked, she got poked two more times and was crying again since they wanted to make sure there were no errors from the port being accessed.  The nurse actually accessed her port and had the blood ready for processing, and it was thrown away and she had to get another iv in her arm and then another in her hand. 

Huge props to Suzy, Bryan, Roy, and Danielle for being such amazing help with Asaph!  God always provides such amazing help so I can focus on caring for Ella Joy at the hospital.  I literally have to carry a water bottle with me and give her drinks every 5 seconds throughout the entire inpatient stay.  It is the only way that in addition to the saline fluids going in her IV that her toxin levels can decrease to safe levels.  “Remember His marvelous works which He has done.” – I Chronicles 16:12 We are still so very thankful to God for giving Ella Joy the miracle of zero and negative, but we realize we need to continue praying for every single trace of cancer to be eradicated forever and ever!  We are praying for zero relapse and that the rest of the 2 years of chemotherapy she has left will go smoothly without any negative surprises.  Please also pray for her appetite, as I have been noticing that she did not eat well during this inpatient stay.  Please pray that she would eat better now that she is back in the comfort of her own home. 

It has been very interesting listening to our children at play.  Ella Joy and Asaph were playing together one day, and Asaph announced out loud that his toy stingray had cancer.  Ella Joy said, “okay, I know exactly what to do! Let’s give him Bactrim on the weekends, and 6mp on the weekdays!”  Asaph was playing quietly the other day, and I could hear him saying, “next stop … Hanover Park!”  I chuckled thinking about all of our train rides home after long weeks in the hospital.  Our next scheduled and last high dose methotrexate will be on March 27-29.  Please pray that Ella Joy’s counts would be high enough on March 25th when we get her blood drawn at home.  Also, please pray that her levels will clear so we will not have to stay in the hospital longer.  I need a lot of prayer because four times now, I gave Ella Joy extra doses of 6mp.  Once was because I was not aware we needed to cut the pill in half before crushing and mixing it with juice, and then another time, I did not factor in the 6mp she was getting at the hospital.  There have also been some close calls when I almost forgot to give Ella Joy her chemo drugs at night.  A couple of times we actually woke her up in the middle of the night.  Please pray I would have more wisdom and be more on top of all of the drugs she needs to take.   

I usually do not have time to blog or post online when I am at the hospital, but … so far, we celebrated Asaph’s, my own, and this past week, Mike’s birthday in the hospital.  So thankful to God for such a wonderful leader in Christ who always gives 100% of himself to God, his family, and his work.  As Mike follows Christ, I will gladly continue to follow him.  “But I want you to understand that the head of every man is Christ, the head of a wife is her husband, and the head of Christ is God.”  I Corinthians 11:3.  Whenever I think about Mike, I think of the verse “that the man of God may be complete, equipped for every good work.” 2 Timothy 3:17.  So, happy birthday to Michael Jongin Won who is truly a gift from God to me, Ella Joy and Asaph!

Our family has so much to be thankful for.  I never want to forget that!  There is no prayer that He has not answered. There are too many markers of His faithfulness to count!  Instead of complaining or being ungrateful, I want to always “remember His marvelous works which He has done.” – I Chronicles 16:12