About a week before Ella Joy started chemotherapy, Asaph started crying every five minutes from morning to night, he would hold his stomach in pain. We went to get an x-ray but everything seemed to look fine. For almost 3 days, he continued to have this pain in his stomach that would come and go all throughout the day and night. It was one of those nights we were so focused on Asaph that we forgot to give Ella Joy her chemo drug for that night! Please pray that even when there are extra challenges that come our way, we would continue to be on top of Ella Joy’s drugs and treatments, and that we would be able to take care of the needs of both Ella Joy and Asaph. A huge thank you to Kim for giving us a ride again this week! And to Jiye and Angela for helping watch Asaph while Ella Joy was inpatient at the hospital. And also to Jeannie who drove us back from downtown after a long week of inpatient at Luries!
This week, the high dose methotrexate started out similar to the weeks past. We gave Ella Joy a lot of water every chance we got, and she cleared at 42 hours, a higher but acceptable .77 which was definitely under the 1.0 mark we needed. However, at hour 48, her levels rose to 1.6! We stayed another night, but from hour 68 to hour 72, it rose again from 0.13 to 0.15 which not only did not meet the mark for under 0.1, but we had to stay another night, making it the longest inpatient stay for hd mtx 5 days! But Monday morning, praise the Lord, she barely cleared with 0.9, and we finally got to go home! Thank you so much for all your prayers everyone!
During this 5 day inpatient stay Ella Joy did not eat much at all. Please pray for her appetite to increase now that she is out of the hospital. She did not get the nutrients she needed to stay healthy after getting this toxic chemotherapy, and my prayer is that she would gain a better appetite so she can continue to fight each day!
We are so thankful to God that this was her last hd mtx! The next time we will be going downtown is on April 9th, and then on April 10th, Ella Joy will get a spinal tap and the chemotherapy vincristine and doxorubicin, and she will also start the doxorubicin pills. Please pray for this visit, especially for her spinal tap since the last time her nurse gave her a spinal tap without any numbing cream on her back. Please pray the cream would numb her back and she would not feel the pain this time around. I think she is traumatized by the last painful spinal tap, and will be very scared to do it again. Please pray God would comfort her through the entire procedure and please also pray for the nurse to have deft hands and much wisdom.
Our family is incredibly thankful for all of the amazing people He has placed in our lives. So many helping with meals for our family, helping with watching Asaph downtown, giving rides, and simply coming up to us and letting us know that they are following our blog and are praying for us. “God has set the members, each one of them, in the body just as He pleased.” – I Corinthians 12:28. We are so incredibly thankful to God for divinely placing each and every single person in our lives to encourage us and help us during such a crucial time! So we just want to thank you all for being such an integral part of our journey! We need all your stored up prayers for the rest of these 2 years of chemotherapy treatment ahead of Ella Joy. Because of your intercessory prayers and love for Ella Joy, we 100% believe you are set by God into Ella Joy’s life , into our family’s life.. just as He pleased!