We are so grateful for your faithful prayers! Thank you so much for following our blog and praying alongside us! Ella Joy’s counts were high enough for chemo this week! Praise the Lord! She got a spinal tap as well as cyclophosphamide also known as Cytoxan. It was a long full day, but we were thankful to get out a little earlier because she was well hydrated early in the morning. A huge thank you to Sunny for helping with watching Asaph again! Also, a huge thank you to Mr. Schrieber for giving us a ride downtown! Also, a special thanks to LJ and Marissa for visiting Ella Joy this week. We are going back to the cytarabine subQ injections that I will continue to give her in the leg at home. We will be doing it for 4 days on, 3 days off, and 4 days on again. In addition to the leg injections, we will also be giving her thioguanine pills for 14 days which are very similar to the 6mp pills we gave her a while back. Please pray for me to have skillful hands and that I would be able to administer these chemo shots without any problems. Please pray God would comfort Ella Joy so she would not hide under the table or be afraid and cry when it is time to administer these shots. I need to be on top of things and always give her Zofran a half an hour before the injections because they make her extremely nauseous.
Please pray for her next spinal tap which will be on June 5th Thursday. In addition to the spinal tap, she will get the cytarabine chemotherapy as well as IV and blood counts.
Her last pigtail more recently fell out, and the hair that she was growing back is quickly falling out again. Every single morning, I always do her hair in the same spot in her bedroom and I always let her pick out the bows. When her last pigtail fell out, we skipped that ritual and I never mentioned it. One day she said, “Mama, I know why you don’t do my hair anymore.” I asked her, “Why is that?” She replied, “It is because I don’t have hair anymore!” Even though the little hair she has is falling out again, and she has gained a significant amount of weight because of the hormones she had been taking, I always try to remind her how beautiful she is. How lovely God has made her. “Man looks at the outward appearance, but the LORD looks at the heart.” – I Samuel 16:7 and her heart is just bursting at the seams singing praise songs to Jesus! We recently moved an old piano from my childhood home to ours. Everyday I play it, she has been learning the “oldie but goodie” praise songs I sang when I was in youth group. Ever since we got the piano, she sits beside me and insists to sing Jesus Name Above All Names, and O Heavenly Father several times a day! She asks me, “Can we just sing it 15 more times? Please!”
I have been reflecting lately on the experiences I have had at Luries and at RMH, and also all the interactions I have had with so many friends and others who have helped our family. I cannot be more thankful for the wonderful and amazing people God has placed in our lives! Being in the hospital setting as frequently as we are, you encounter so many different health care professionals. Some are excellent and you can tell they love what they do. Others are not as excellent and do not seem to love their job. Most of them know how to do their jobs (to be honest I watch them so closely that I can do almost everything they do) but it is how they interact with the children and families that makes all the difference! Maya Angelou said, “I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” I realize that instead of complaining in my heart when things do not go the way I would like, or when people do not meet my standards… I want to be that parent that prays for and flashes a huge smile at them so they would leave our room humming a praise song to God as they go on to the next patient.
Do your best to present yourself to God as one approved, a worker who does not need to be ashamed and who correctly handles the word of truth. – 2 Timothy 2:15
I want to be a worker who is approved before God and I want to be the type of person who makes others feel good. It is so easy to love the friends who have been supporting us from the beginning and following our blog and praying for us. It is easy to be thankful for our friends who have been helping us with rides and helping with watching Asaph. However, the real challenge is to love people who might not be as easy to love. This is where I need your prayers and the Lord’s help!
Thank you so much for your continual unceasing prayers! We are incredibly thankful for you! Please never stop, never give up praying for our Ella Joy!
Speaking of “oldies but goodies,” as Ella Joy fights her battle against cancer everyday, we know she is not alone. She is fighting in the Lord’s Army.