We appreciate all your prayers for Ella Joy! This month, we were expecting her blood counts to look good as they have been in the past. This month, her blood counts were drastically low. I knew there was something wrong when my APN came and sat down next to me to explain her blood counts. Her white blood cells were alarmingly low as were her hemoglobin blood counts. Her ANC was altogether way too low for the daily chemo she has been taking. So as of now, we are going to have to stop her 6mp and mtx pills until her ANC gets high enough. We will continue giving her prednisone and Bactrim. We would like to ask you to please pray with us. That God would continue to protect Ella Joy’s body. She had been complaining about her stomach hurting. She also had some issues after her last clinic where her legs were hurting when she walked. So she “waddled” around the house like a penguin because she said it didn’t hurt as much when she walked that way. The increased prednisone had caused her to cry and weep uncontrollably for long periods of time. She would tell us she did not know why she was crying, and she said she could not stop. There have been some short term side effects of chemo we have been seeing, but we are praying that they would be short-lived, and that she would be able to overcome the leg pains, the way the drugs make her feel emotional and irritable, and that her stomach would feel better soon. Before she was diagnosed with stage 4 cancer, I remember she would complain about her stomach hurting. When I went to her pediatrician, he said it was nothing and she was just wanting attention. Now, when she says her stomach hurts, and also her blood counts are way too low, I never want to dismiss her pains. Please pray for me too, because I do not want to worry and have this sinking feeling in the pit of my stomach. I am well aware of how aggressive t-cell lymphoblast is, and that is why at this time when her daily chemo is going to be put on hold indefinitely, I need to get on my knees and pray that cancer would not spread aggressively in her little body. Please pray for zero cancer and negative MRD. Ella Joy did get a spinal tap this morning along with her vincristine chemo. My prayer is that her body would be guarded and protected throughout this week even without her chemo drugs.
A special thanks to Eddie who drove us to RMH, as well as to Marissa who helped watch Asaph while Ella Joy received chemo and get her procedures done. Next month, we had to reschedule because our oncologist and our APN were not available at our scheduled day, so the next appointment will be on Thursday April 23rd. We will have a home nurse draw her blood next Wednesday afternoon. Please pray that her white blood counts and hemoglobin and overall ANC will rise so that she can get back on her daily chemo meds. Corrie Ten Boom said “Worry does not empty tomorrow of its sorrows; it empties today of its strength.” I realize I cannot show Ella Joy I am worried when I see that things are not going according to plan. I want to give her hope and I pray that God would continue to strengthen her through this time. Instead of worrying, I need to fill my mind and heart with Bible verses:
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. – Philippians 4:6-7
Do not let your hearts be troubled and do not be afraid. – John 14:27
Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful. – Colossians 3:15
I really need to focus on being thankful to God. For so many blessings he has showered on our family and Ella Joy! But I realize I am so weak, and I need your prayers to help me see with spiritual eyes! Benjamin Franklin once said, “Do not anticipate trouble, or worry about what may never happen. Keep in the sunlight.” May I please make one change to his quote? I hope my man Ben doesn’t mind … “Do not anticipate trouble, or worry about what may never happen. Keep in the SON light.
” Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before him endured the cross, scorning its shame, and sat down at the right hand of the throne of God. – Hebrews 12:2